tag:blogger.com,1999:blog-6695267254254356855.post224307763173086003..comments2023-11-02T07:21:09.184-07:00Comments on From Lyme to Limeade: Imagine: Stand In My ShoesLeilahttp://www.blogger.com/profile/09820775300736232329noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6695267254254356855.post-46905294690451721642012-10-19T08:47:55.857-07:002012-10-19T08:47:55.857-07:00Did all those things happen to you? Wow, I could h...Did all those things happen to you? Wow, I could hardly imagine myself having any of those. You obviously is a strong woman. Bad things happen to good people eh. Don't lose hope and keep praying. Cindyhttp://www.rotlaw.com/transvaginal-placement-of-surgical-mesh/noreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-87295123435335002352012-10-14T22:33:34.037-07:002012-10-14T22:33:34.037-07:00For the years you have faced this illness, you hav...For the years you have faced this illness, you have proven to be amazing & strong. Your friends who don't understand what you are going through will never understand. It is a pity that they are disconnected from you, as you need every ounce of emotional support during such an overwhelming sickness. I am sorry for everything that you are experiencing and I do hope that, in time, you are able to heal & find the happiness & health you so deserve. You are an eloquent, intelligent lady. And, you are loved... Even if you don't hear those words every day.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-61361033958331475162012-10-11T19:36:10.782-07:002012-10-11T19:36:10.782-07:00dear leila
i'm a silent reader of your blog.th...dear leila<br />i'm a silent reader of your blog.this entry was the one that made me cry.words can't say how sorry i am for you and all the things you have to deal with.i don't have a chronic illness but i'm suffering under depressions and anxiety for years which is terrible but when i think of you and all the pain you have to live with every single day for so long now,i don't know if i could survive this just one day.you're a survivor leila,you show this world every day what kind of fighter and life lover you are,i believe that not many people could do what you are doing every day and you still being so positive.you don't know me and i don't know you but i feel your pain so much in your words,it makes me so sad that life is doing this to you.<br />i wish you all the best,please never give up,i wish you healing more than anything and way less pain,you deserve so much better and i'm hoping that one day this nightmare is over for you and your body is doing better.<br />xoxo,sophie from austriaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-37273011683897348932012-10-10T23:24:32.458-07:002012-10-10T23:24:32.458-07:00Leila,
I am sorry for all your struggles. I can ...Leila,<br /><br />I am sorry for all your struggles. I can relate, yet not totally. I too, have Chronic illnesses but I don't have quite the sensitivity as you do, thankfully. I wish there was some miracle cure for you, for all of us. I will keep you in my prayers. One time I was feeling completely alone and my friend, Michelle over at My Lyme Symphony wrote a letter to her chronically ill friends. It's here: http://www.mylymesymphony.com/2012/08/i-know-you.html Surprsingly, it not only brought tears to my eyes but was extremely comforting. If you are interested, Leila -I know we are sort of far away-we could chat by phone and maybe occasionally get together for a visit? I am in Sacramento. (If you are interested, let me know and I'll send you my info.) If not, I understand. Just know you aren't alone. There are others out there like you, unfortunately. <br />Thinking of you and praying for you also. <br />GinnyGinnyhttps://www.blogger.com/profile/12826701514928054537noreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-57201203937856991932012-10-10T10:36:17.471-07:002012-10-10T10:36:17.471-07:00Thanks Angela. Unfortunately I am allergic to THC....Thanks Angela. Unfortunately I am allergic to THC. At first I thought it was something in the smoke but then I tried a couple drops of straight THC oil and had a horrible allergic reaction to it :(Leilahttps://www.blogger.com/profile/09820775300736232329noreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-86339204288650455132012-10-10T09:41:45.270-07:002012-10-10T09:41:45.270-07:00I havent heard of anyone that does well stopping C...I havent heard of anyone that does well stopping Cymbalta suddenly, please taper slowly if you are not doing this already.<br /><br />You can write!<br /><br />Best<br />JuliusAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-47822393513648048102012-10-10T08:22:28.778-07:002012-10-10T08:22:28.778-07:00leila-- i am so sorry for all that you are going t...leila-- i am so sorry for all that you are going through-- it sounds horrific to me. i also have an auto-immune disease, rheumatoid arthritis-- at one point in my life it completely debilitated me -- then i started researching this disease and found out that my anti-depressant, and other medications were actually making it worse. i quit taking all medication and started ingesting and smoking THC-- i can not tell you what a difference it has made in my life. i know not all people are open to this, but man oh man it has changed my life and my RA doctor approves and is amazed at how my disease has stopped progressing (: the are other ways of obtaining THC besides smoking -- they make it in oils to ingest-- please check out the web site "phoenix tears" and see how many people these oils have helped. it seems to me that you have suffered long enough and tried traditional and non-traditional treatments... maybe THC oil would work for you-- anyhow, just my thoughts. i am thinking of you and hoping that you find some relief soon. <br /><br />angelaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6695267254254356855.post-38544861322617276132012-10-09T20:40:40.255-07:002012-10-09T20:40:40.255-07:00Leila... That blows goats. Sweetie, I'm so sor...Leila... That blows goats. Sweetie, I'm so sorry. Chronic illness that's as debilitating as yours is difficult enough, but adding the lack of medical research and the glut of medical and popular skepticism... It's awful. I've watched my mom struggle with severe, atypical Ehlers-Danlos Syndrome for about fifteen years now, so I know that this sort of complicated and hard-to-root-out chronic pain and malady can be utterly crazy-making. I hate that you're going through this.<br />One thought... Is there a generic 'rare disease' or chronic pain support group in the Bay Area that you might be able to join? I know it's nearly impossible to get there right now, but it might be something to investigate in the near future when you've crawled out of this Pit of Bad...<br /><br />More later. Much love.<br />AmyAmy Patricknoreply@blogger.com