Sunday, September 21, 2014

Taking a Break

In light of my father's sudden and unexpected death last week, I will be taking an indefinite break from blogging. It sure has been a season of unprecedented losses. I need time to wrap my head around this. Wishing everyone the best.

4 comments:

  1. Leila, I wrote a reply from sometime ago when I looked up elevation sickness and read your tales of experience. I have gone through the blog until I so sadly came to this. It breaks my heart. I am 34 years chronic, between my 6th and 7th year of chemo/treatment. Our conditions lists are identical in many ways. I am much further down the road, but you are one of the "vets" like me. The ones I hate to find, but always, always reach out to because the time we have endured is soul-crushing. But, we are still here, damn it. I just want you to know you are not alone! We just lost 4 of our beloved Elders to old age and illness within 6 months of one another. Prior to that we lost our father the previous year to suicide. I write all this to tell you, I understand and I know how devastating this is, especially for us. It is so hard to go through all that we do, your blog reads as if it were my own thoughts, my words and my heart. Then, to suffer such losses...the stress response is SO overwhelming. My Dearest, beautiful CBA, I know you do not know me. But, please if you need to vent, PLEASE do. I am a writer myself and when I cannot use my hands and voice recognition doesn't drive me half insane, it is the only thing that has kept me on the face of this Earth, at times. I know too well how desperately lonely it gets. When you are dealing with these losses, man, the sadness creeps in and sometimes, there is only so much grace we can hold. We are human. I am holding sacred space for you, your father and your Loved Ones. Thank you for all these years of putting your story out here. Thank you for all the hard work it takes to make this blog. After finishing my 6th year, I was given and flakey, indefinite prognosis this summer. I took a break despite the warnings. I had to. Sometimes, you just have to. Since typical protocols yielded no results, I am choosing alternative methods and taking another crack at it starting the next 2 weeks. I will be thinking about you as I follow this new path. You are inspiring. I would be honored to connect with you sometime, if the time is ever right. Blessed be! Namaste, Leila!

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  2. Hi Leila:) I want to thank you for your very insightful blog:) I also want to express my condolences for the loss of your father and your lovely friend, Heather. I lost my mom last year. It is very hard to accept. I have very similar genetic mutations to yours and very likely have the Lyme and co-friends. My Lyme test was inconclusive, however, my integrative doctor suspects Lyme. I have been researching it and its co-infections for 2 years now. I am also electrosensitive. I appreciate the fact that you have shared all of this info, as it validates my own experiences. I no longer worry about what people think or say, because they cannot possibly understand what it is to be in my shoes. I keep a low profile. I live with my sister and I no longer work. I try not to dwell on what I used to do, but dwell on what I can do. I also discovered a simple protocol that is helping. There is a website called LymePhotos. There I learned about a protocol that is simply vitamin C and salt. I use Himalayan salt. I also use liposomal vitamin C. As long as I keep using these 2 things I have been able to maintain a measure of health. I have to be careful with the salt and spread its use out through the day. I later discovered that this protocol was discovered by a couple of people, one who had severe Lyme and co-infections. She is a Naturopath now and doing very well with her health. The other thing I am going to do is deal with the methylation problems. I will be following Dr. Be Lynch's protocol. I have to prepare my body first with his advice. I realize each individual has his or her own prognosis. What works for one person is not always what works for another. I also want to share the benefit I have gained from vitamin B-6. About 30 to 50 mg's of B-6 twice a day, has cleared my brain fog, has given me energy and has removed my rage and removed my depression. It is unbelievable! That depressed state of mind was totally debilitating. Now, I feel I can tackle this illness with success. The other important factor that has helped me is my spirituality. I have the hope that soon all sickness will be a thing of the past, as will death and suffering. This is promised in Revelation 21:4. I encourage you and all those reading your blog to please visit jw.org for further hopeful scriptures and the opportunity to study the Bible free of charge to have questions answered about the important questions we all have, such as: why are we here? Why is there so much suffering? Does God care? When will suffering end? Will we see our dead loved ones again? I hope I can encourage someone to keep looking forward to solutions. Here is a loving hug for everyone:) Laurie

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  3. Hi Leila ~ I just wanted to let you know that you are in my thoughts and prayers ~ what a deeply challenging time you are going through....
    I want to to know that I so appreciate your blog ~ we have much in common and I so wish we lived in the same city (I live in Canada). Before LD I was a music teacher, artist and I worked with horses. I have two wonderful kitties now, both of whom I am so thankful for. I have just started my own blog (very nervous about putting myself out there) and you are one of my inspirations.
    Anyway, just know that I have felt less alone because of your blog & who you are. May you find healing in this time and peace in your soul��

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